Lifestyle & Trends - Community

Rare Disease Impact Report quantifies patient and caregiver challenges on journey to diagnosis and beyond

Getting a diagnosis is just the first of many challenges patients with rare diseases - and their caregivers - face.

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New initiative celebrates unsung heroes of severe allergy awareness

Individuals at risk for anaphylaxis - a severe, life-threatening allergic reaction - know the importance of having people around them who can help with allergen avoidance, such as bringing allergy-friendly food options to the company party or helping to shield from bees on the playground. Now, there is a new way to say "thank you" to the teacher, relative or co-worker who has made a difference in the life of an individual at risk for anaphylaxis. Sanofi US has launched a Severe Allergy Awareness Facebook page where individuals have a unique opportunity to create online awards via the "Celebrate Someone" app to recognize an unsung hero of allergy awareness.

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Technology can turn $25 into a family giving tradition

Technology has been connecting families for generations. The invention of the phone let us hear voices of loved ones far away, and the creation of the Internet helped us to see them. Today, those same technologies that we've used to bring our families closer together are helping us to connect with and support families who are worlds apart. In doing so, the very concept and experience of "gifting" and philanthropy is being transformed.

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Five reasons Asian Americans should get tested for hepatitis B

More than 1 million Americans have a lifelong, or chronic, infection of hepatitis B. This includes one out of every 12 Asian Americans. If you or your parents were born in Asia or the Pacific Islands, the Centers for Disease Control and Prevention (CDC) recommends that you get tested for hepatitis B.

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Nearly 1 in 10 Americans lives with a rare disease

Did you know that the same number of people die each year from idiopathic pulmonary fibrosis, or IPF, as breast cancer? And yet IPF, a rare and debilitating disease that causes permanent scarring of the lungs, is still relatively unknown.

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